ocd for u and me

Saw a doc today.
out of the university - will be part of a study program.
psychiatrists in training.

Doctor: "I run a tight ship. Everybody goes through rigorous training, and all meetings are reviewed with the supervisors who then give their notes on the following meetings with you. Don't worry. You will be getting the help that you need..."

She was so very nice.
i felt like she really understood me.

"I know this can't be easy, it impacts your life, keeps you from moving forward. We will be here to help you, help you find answers..."

They had a bipolar expert, PhD, MD on staff, but he is on sabbatical.
"But that's alright. We will find you a match - as close to perfect as we can..."

Huge sigh of relief.

I was on a waiting list since March 2010 for one other hospital.
"We will call you in July for an appointment for an assessment"

September rolls around. I call.
"It won't be before the end of October, but that does not guarantee you will get into the CBT clinic. Just so you know..."

Thank you. Not...

So at the other end of the city, my weekly commute will take almost an hour, but if i can be seen by somebody who cares, and perhaps, out of my misery and fucked up state of mind, will be able to care for somebody else who they will come across in their future practice who will have an equally fucked up state of mind, then all of this is a blessing.

Last night - restless. Bed bugs in my brain. Syphoning the logic out of every logical though, so that all was left was a infected irrational thought, poisoned, and throbbing, infected and disgusting.

Today, the sun alternating with the grey clouds kept me on my toes. Will it rain? Shall I dash for cover?
Oh, nope. The sun is coming out again.
Run into the light, bask in the warmth.

Walking out of the old world campus, tall turn of the century buildings standing like wise old professors over this young new pupil, head filled with glorious and grandiose ideas, silently guiding her along the path of self discovery and enlightenment.

***

I have my first swim lesson 2mrw.
Not so much a lesson as a perfection of techniques.
Want to feel efficient in the water again - a time when my strokes were effortless, poetic and fluid.

Looking forward to finding my equilibrium again, in the water and on land as well...

A letter to a friend

a letter to a photographer friend today - a reply to his message after seeing my film
Clair Obscure.

I was surprised by what gushed forth
sometimes I surprise myself, in a good way :-)

Oh Dave,

you have no idea how much your message has touched me. So many emotions. I don't know where to begin...

first, I'll start from the end...

Interesting you picked up on the whole doc/60's-70's feel. I guess my religious viewing of films such as shock corridor (Sam Fuller), Titicut Follies (Frederick Wiseman), 2001 (Kubrick), A woman under the influence (Cassavettes) and of course, One Flew over the cuckoo's nest (Forman) and Let there be light (Huston). Film has been a huge part of my life. When my parents divorced, i was 11, and my weekly father's visits consisted of dinner @ Wendy's or McDonalds followed by a movie. That's all we did. That was his way of connecting. After watching a film, we'd go for ice cream and have our own "At the movies" critique session. You can imagine how interesting they were when we saw 2001 a Space Odyssey and Apocalypse Now (he snuck me into that one. Opening week - crazy insanity. He literally snuck me underneath his coat!!)

And when I did film production @ university, we were old school. 1990. Cutting film was an organic experience. Almost spiritual.

manic depression is often a ticking time bomb, present in the family tree and detonated during or after a traumatic event - my detonation was my parent's split. After that. puberty wreaked havoc until I was 19. That's when I had my full blown breakdown. It was ugly. It is truly a miracle I lived to tell the tale. I should have been dead by now, more than half a dozen times over...

After almost a year of being shuttled from emergency room to another, I was helped by a doctor who was starting a crisis clinic at one of the hospitals. She was a pioneer in her field and research into bipolar. It was the light at the end of the tunnel, but little did I know, the tunnel would be filled with sewage, rot and stigma. (funny enough - while I'm writing this, I just realized that the whole scene in the tunnel might have been a subconscious link to that...)

I was hospitalized for a week and then a day patient for a month. The big mental hospital is actually an old mansion on the mountain. Ornate, yet now devoid of all its glamour, it was a hollow shell of a once grandiose existence - so much like the life of a person with bipolar - after the crash...

I knew I was not 'crazy/over the edge" as some of the people there were, but i was not far from it. I had actually looked into the abyss. Stood on the precipice of no return. It was a welcome end to an existence filled with pain, confusion and relentless chaos. That ledge was so narrow. Despite my new 'medicated lithium state", it was terrifying to actually know that i was so close to jumping into an alternate reality because mine had become a living hell. The woman who sat in the waiting room, in the buss, arranging her groceries, watching out the window as the world passed her by, letting the wind blow through her hair. That could have been me. In that waiting room, in that other world...

what brought me back, i still don't know. But to this day, I am forever thankful that by some divine intervention, i returned. Perhaps it was the will to live, my higher reptilian brain telling me to push through. Or perhaps it was my old soul telling me it was my gift to be able to share this experience with the world. That my suffering was indeed necessary to be able to coherently explain life "on the other side" and to give others hope, and others insight into an existence that is nothing short of hell on earth...

Your relationship with your ex-girlfriend - bless your heart. We all need somebody as understanding and loving as you are to her. You are insightful and kind to realize that bipolar is something bigger than we are. It is bigger than our logical mind. It is our emotional mind on crack. It's the vortex of fear and isolation, of gravity and pain twisted around synapses that fire furiously, out of control, without a plan. Rabid. Paralyzing. What we say and do during our mixed states is not of our own consciousness. It is the muddled kaleidoscope of isolation, broken dreams and terror.

And ADD, I suffer from that too, albeit a mild version but  I know all too well how that can turn a normal task into a labyrinth of confusion and complication.  Mine runs into elliptical and illogical ruminations about death, paranoia and other worst case scenarios. Sometimes, I can't even step out of the house because I'm afraid that the earth will open up and swallow me whole, or that I will spontaneously combust. My mind checks over the details like a mega processor, but the computations never add up but information spews forth at random, adding to the confusion and chaos in my brain.

Dysthymic  Disorder - that languid melancholy, worn like a wet overcoat. How it turns the most beautiful sunset into a realization that another day has passed and life is that much shorter.  How the excitement of a new day is filtered through the density of apprehension that what we didn't do yesterday is yet another reason to put off what we could have done to what we should do, but then as the sunset begins, we get lost in an endless cycle of regret and what seems like idyllic hope. I really hope that you are able to manage those episodes. That you have found a medication to ease the pain. I have found that CBT (cognitive behavioral therapy has helped me a lot), but as with all ways of seeing and learning, it takes practice. The key is to stay positive and focused. Which for people like us, is nothing short of a hurdle in itself. Having friends who understand and believe in you are key.

But I think the worst part is dealing with the people who think "it's all in your head". Yes. It is. But despite that when they say : "just snap out of it" - mental illness is a chemical imbalance. The brain is a complex system of nerve tissue, fibers, neurons, dendrites and synapses - all working together or against each other. Even in the 21st century, science is still in the initial stages of comprehension and unraveling the mystery that is the human mind. I have had to deal with people who say: "just get a grip on life", "everybody has problems", "it's all in how you deal with it" or the best one: "buck up and face your problems like a man/woman".  It is my hope that one day, people who are these ignorant naysayers live one life in the mind of somebody who suffers as we have. I have no doubt that they would quickly change their mind and opinion, but until then, I try with my photography and films to drive the point home.

Did you see my "blue series" on flickr? I have a bunch of other "self portraits" that try to illustrate life on the other side of sanity. With each shutter click, i hope that one day I will get closer to being more cohesive, better at expressing my experiences. It's important that people know and understand. Ignorance breeds contempt and hatred. Our world is filled with enough of that. 
People who suffer by no will of their own need a fucken break. 

All my life i've had to deal with people labeling me a "weird/off/strange/psychotic/wacky". A good friend of mine from high school with whom i recently reconnected with said that people often came to her and asked: "why are you friends with her? She's pretty messed up." But she stuck through, believed in me and said - 'that's why she's so special. And that's why she's my friend." If only i had that kind of unconditional acceptance from my friends and family. 

After a nasty court settlement when i turned 20, my mother, father and both lawyers on both sides sat in our lawyer's office and when asked if we had any last words, I looked at him and pulled out a piece of paper.

"dad, you think that this is all in my head - this depression. this mania. my suffering. Here is a list of doctors that will tell you that I am in fact suffering from bipolar disorder. That it is real. I encourage you to get in touch with them and talk to them yourself."

without looking at me, he packed up his briefcase, took the paper, folded it into a tiny square and shoved it in his pocket. 


"Well, if I were to ask the doctors when all my problems started, they would say that it all started when you were born."

And with that, he left the room. His lawyer, my lawyer and mother all stood there, silent and shocked. His lawyer apologized profusely. So did our lawyer. So did my mom. It was something I would have to get used to.

How ironic is it that to this day, my dad, even though he has seen my film, still does not believe that what i suffer from is a legitimate and medical condition.

It is still something I am getting used to. But if my film can touch one person, then all of this will have been worth it.

And your message has made me smile.

I'm so happy that it touched your life. That means everything to me.

Please stay well Dave, and i have faith that one day, we will be able to share our stories on the battle field. We have come through the difficult task of survival, overcoming the stigma, and through that, will inspire others.

hpk

Because I still struggle with this...

as promised, and long overdue, my first sound 16mm student film. I made this during the first year of (my 2nd degree) Film Production specialization in what is now called the Mel Hoppenheim school of cinema.

The sound is crap, i know. The picture is shitty but the idea is there and for now,

that is all that matters...

(tip - click on the little square between the bars and the "Vimeo" logo". This way you can see it larger, which is better...)


Clair Obscure - a visual autobiography from Kathy Slamen on Vimeo.

I did everything here, aside from act.

That is my voice you hear. This is my experience you are seeing.

My professor warned me about the pitfalls about making a film on mental illness, because it was a complicated subject, and because i was a rookie, there was a fine line that needed to be balanced upon - because too serious or too light and the message would not come across as intended. I'd either end up with a bad comedy or a bad horror film.

But i was determined, and for 6 months of my life, i was this film in ever sense of the word. And my professor as well as a few close friends and family believed in me when nobody else did. And the day i had my final "rough cut", 12 people were stunned silent for minutes as they absorbed the film they just saw.

And this film has gone on to touch lives, win awards and open minds to what is the major leading cause of illness next to cancer - mental illness.

After the past two years of my public struggle with manic depression, the urgency to put this film "out there" and embark on a new project has come, but I have to lay the foundations first.

This film has already won numerous awards, brought many people to tears, but in the end, it was about sharing my story with the world, and i think that after all is said and done, perhaps this is my purpose in life - to illuminate, educate and reach out to those who are familiar and not so familiar with this disease.

So the next time somebody says that mental illness is not real, tell them from somebody who suffers from it - mental illness is a cancer of the mind and spirit.

it's real, and this film and i are living proof...

i am the little filmmaker that could...

Something you need to know...

What you need to know.
What i'm going through is real.
It's pain, it's horror, it's fear and hopelessness.

It's real and if I could possibly have any wish is that everybody on the planet who says that "bipolar illness isn't real" have one day in my shoes during one of my worst episodes.

But I know that will never happen, so it remains my mission to give a shout out whenever I can. To educate the ignorant and to shout at those who choose to feign  hearing loss.


It's All in Your Head And Other Thoughtless Things Said!
By Marcia Purse


How often have you been accused of whining or being a hypochondriac? Do people think you are just a complainer, an attention-seeker, when depression makes it difficult for you to cope with daily life? Are you told that "there is absolutely nothing wrong with you?" Do people tell you to "get over yourself?" I am sure that everyone with bipolar disorder has had those completely thoughtless things said which we can quote verbatim 5, 10 and even 30 years down the road.

Sometimes those with whom we interact can be narrow minded and cutting. And for every person who says something deliberately hurtful to a person with mental illness, there are a dozen who say things thoughtlessly or out of ignorance. Unfortunately, regardless of intent, words wound, fester and scar.

The following is a short list of things people say that are often intended to be helpful, but are actually tactless. Perhaps these will better equip you to respond to the thoughtless comments and to illustrate the need for each of us to better think through our word choices.

What was said: It's all in your head. You are a hypochondriac.
What may have been perceived: You are either completely deluded or making an excuse for poor behavior in order to get my sympathy. I don't believe in that psychiatric mumbo jumbo. I don’t believe that you actually have a real illness.
The Fallacy: Mental health problems are the result of a character flaw or weak personality. Mental illnesses are not real diseases.
The Facts: Bipolar Disorder is a medical illness with a physical cause probably rooted in structural or biochemical abnormalities in the brain. In short, it is very real, just like diabetes or heart disease.

What was said: We all go through times like this.
What was perceived: You are overreacting. Stop making mountains out of molehills. You can't handle life as well as I can.
The Fallacy: Everyone has the symptoms of Bipolar Disorder.
The Facts: An article by David A. Kahn, M.D., and colleagues entitled Treatment of Bipolar Disorder: A Guide for Patients and Families1 offers an excellent perspective for addressing this fallacy. "We all experience a variety of moods -- happiness, sadness, anger, to name a few. Unpleasant moods and changes in mood are normal reactions to everyday life, and we can often identify events that caused our mood to change. However, when we experience mood changes or extremes that are out of proportion to events or come 'out of the blue' and make it hard to function, these changes may be due to a mood disorder."

What was said: Just shake it off.
What was perceived: You've created this problem for yourself, so just get over it and move on. I am out of patience with you. Don't bother me with this again.
The Fallacy: Everyone can and should control their emotions.
The Facts: Bipolar disorder is a medical condition. Those with this disorder can no more snap out of it or shake it off then those with a broken leg.

What was said: He must be demon possessed.
What was perceived: I am righteous. You are not. Everyone who believes in God is perfect and does not struggle in life. You are a sinner and got what you deserved.
The Fallacy: Bipolar Disorder is the result of misconduct.
The Facts: Bipolar disorder is not your fault. It is not the result of something you did or didn’t do. "Bipolar disorder has no single proven cause, but research suggests the illness is due to abnormalities in the way some nerve cells in the brain function or communicate." (Kahn et al, 2004).

Sources:
Kahn, D.A., Keck, P.E., Perlis, R.H., Otta, M.W., & Ross, R. (2004). Treatment of Bipolar Disorder: A Guide for Patients and Families2.