despite it all...

despite it all, she said the following:

"I told B that I would get better just to spite the system and this f*&ing hospital!"

More nightmare scenarios (but not as bad as two aprils ago), but still pretty shitty.

She's dealing with shingles to top it all off.

but she's not giving up.

My God. This woman is beyond amazing.

She's unsinkable and unstoppable!

My mom.

My Idol.

speaking of unstoppable -

from a friend who overheard something somewhere during the night of the big event:

(in-between the speeches (and there were only two - the groom and the best man...):

All these speeches, it's as if you don't exist.

Yep.

Father's new wife.

Isn't she a peach?!

So it seems like a nasty comment turned into a discussion on their way back home which turned into the nasty email he sent me, one day back after my honeymoon.

That fucken woman is pure evil.

Remember, she's the one who MADE my father have a vasectomy. Something she was very proud to share with me after the fact.

Evil evil evil.

Poison.

Out out out.

For once and for all, I will try to walk away from this and other people who try to pry their way into my life. The unwanted brood.

You can't hurt me anymore.

I won't let you...

a letter to a friend with news on mom and reflections on the "c" word

I have to make this short, it's been a long fucken day

Surgery went well - they got the shit out - including her appendix.
They are pretty sure it was the cancer coming back - she said something weird: "I might have to retire - the cancer is aggressive, and it will come back again and i'm okay with that..."

Every time i hear this it makes me think of resignation

"Yea, but your tumors - the others that they thought were the "end all of your life - the last batch - shrunk and disappeared..."

"yea, you're right..."

Its so hard to be fighting for her.

I know that i will have some fighting of my own to do soon too. It will only be a matter of time until I get something to do with skin cancer - my chances are now up to 85% that i will get it in my lifetime (it also runs in families) - both parents with cancer, the shit that is up with my cervix (they found abnormal cells - see the doctor in september...) if something happens to me, i won't be able to take care of her...

fucken hell. the mind is starting to spiral again.

not good.

but i don't have cancer yet, and she is on the road to recovery, but i can't help but have all this shit hang in the back of my mind all the time....

anyway sweetie - sorry to sound like a downer.

I need sleep - long day today followed by another 2mrw.

It's so hard to be positive when you are so tired.

Why is that so?

If being happy takes so much effort, how can being happy be a good thing?

Doing my silly monologue thing.

Dangerous when i find myself starting to sound like Carrie Bradshaw mind melting with Camus...

Farðu rökfræði

Farðu rökfræði

fuck logic

Fuck logic

here is a letter to a friend.

I am so upset right now and hate having my eerie ability to act on my gut questioned.

I will have to go through my archives to find ALL THE TIMES (and yea, there were many) that i did act on my 'intuition" and amazing things happened. But this time, Mr. Logical had to ruin the day.

Mom goes in for surgery 2mrw to remove the mass.

I was shocked when she said: "you have to take this trip. Even if i have to take a cab to or from the hospital before/after the surgery, so be it. You have to go..."

and this is my mom...

so here is the email i sent to Y, the woman who many months ago, out of the blue, while holding my hand and feeling my energies, told me that I had to go to Lake Placid, because there was something there for me. This is the same woman who has told me and my mother many times of many things that without a shadow of a doubt, have come true.

Mystic perhaps?

Or as e would say - "lucky guesses"

but one guess is lucky, 20 is more than luck...

and lake placid - what were the chances that e would have to go there?

And of all places in the U.S - there???

Hi Y,

thank you for getting back to me. I passed along your email to my mom. She is in prep mode - right now she's at work and 2mrw she goes into surgery 1st thing in the morning. We are all very stressed. The doctors have been very supportive of her and she is getting the best care. Her new surgeon is so wonderful and the moment i met him, i had such a wonderful feeling. i know she is in good hands.

She will have to take another unpaid leave, which is pretty disturbing as she has run out of paid medical leave time. And it's tough too - I don't think either of us has had time to grieve the loss of her mother/my grandmother. it was her death, my wedding and now my mom's next surgery. Cuba honeymoon was a Godsend. Without that, i don't think i would have been able to survive this next journey.

Speaking of journey...

I need your advice.

The man just got an invitation to go to Lake placid for a business seminar/trade show. This came up completely out of the blue, and of course, I flipped when he told me because i remember your telling me that you had a feeling that lake placid was the place for me to go (that time we sat on my mom's steps when you felt my palm/energies). I told my mom - she said: "Go. Even if i have to take a cab to and from the hospital. If Y said to go, you have to go!"

I feel the same way. As does she still.

But e on the other hand, is not really sure.

He's trying to make excuses for me not to go - "ah, it's business, you'll be bored and stuck in a hotel room" and his latest: "we can go another time"...

but I have been telling him - IT"S NOT THE SAME THING!

but alas - a skeptic is always a skeptic, and now he has me doubting my gut feeling which is telling me to go.

But would it be the same thing if we go another time?

I feel that this chance is like a gift of fate - and that perhaps something will happen, perhaps not, but i don't want to not take this chance. In my experience, if i act on something that feels right - then something usually comes out of it. But if that instance/coincidence is changed in any way (like e's wanting to 'reschedule") - it just won't be the same.

Y, please tell me i'm crazy, but without e being able to take me down on this trip, it just wont happen - whatever is to happen.

You can't 'reschedule" fate! Am i right?

E will have to leave on monday so that does not give me much time to make a decision. I have been quickly looking into alternative ways to go down there but there are none. The amtrack route or the buss routes don't stop there, there are no planes that fly there and there is one transfer buss point and it will take 5 extra hours. I don't know what to do.

What is your gut feeling??

I have been feeling so lost, and weep all the time. I feel that i am running out of options, time and faith.

Photography has become painful - a grim reminder of something that i had once loved so much but is now giving me grief because every avenue i have taken in terms of getting my work out there has closed in my face. The same with film and writing.

I don't have much energy - and with trying to be supportive of my mom, it leaves me empty - both emotionally and spiritually. This void has become my cancer....

I'm so sorry to have to end this on a sour note, but i am such a mess right now, i can't even type any longer.

if you can get back to me before next week, it would be so very much appreciated.

and yes - i need to come down and see you and N. Your kind kindred spirits would be just the kind of prescription for a wear soul that the doctor would order.

take care of yourself and we will talk soon

friday

mom goes into surgery on friday

I guess the pathology report will take a week or so

let's hope it all gets taken out

every last little fucken cancerous cell

out

out

out!

if no news is good news, then new news is bad news.

the cancer is back.

There is a growth in her stomach and we are meeting with her surgeon on tuesday to see what the next step will be.

her oncologist wants it removed pronto.

She is worried that she will have to take more time off work, which is not a good thing.

We are all floored.

What happened?

The other tumors had disappeared.

And then this?

The doctor thinks that the prednazone she was taking for her rheumatoid arthritis (an immune system suppressant) might have compromised the il2 treatment (which was an immune system booster)

why why why

this is not fucken fair.

The waiting is the hardest part...

mom gets her results 2mrw.

We are both so anxious.

Her more than me of course...

but i can feel her pain, especially since she is already battling cancer, and now the wait - to see if the treatment is still working.

The waiting is the hardest part.

My breasts are like a well marbled porterhouse steak

my breasts (according to my ultrasound of them today) look like a well marbled porterhouse steak.

Unfortunately, those are not my melons, so I thank whoever put those up on the net for me to make this wonderful analogy.

While mom was going for her PET scan, i was seeing the breast specialist about the lump in my left armpit near my breast. He looked at the mammograms, other ultrasounds, and then decided it needed further investigation. Two hours later, at the other side of town, i saw him again, this time, radio waves would bounce off them to send home pretty pictures.

He explained the whole image: "this is your rib, muscle tissue, fatty layer..."

"Geeze. That looks exactly like the porterhouse steak I had yesterday on the bbq"

He laughed aloud.

"that's the first time i ever heard that one before!"

"It looks like a good one. Well marbled..."

He laughed again. And then I began to laugh at the nonchalant way those things just rolled off of my tongue. Yea, that was pretty fricking funny.

They found the lump and took a biopsy. I saw the needle go in - black and white - live feed. In and out, "jiggling it a bit to get all the cells we can." It began to hurt.

"We're almost done."

And then we were.

The results. Did I really want to know?

"you can either pay to have them done here, and you get the results in 10 minutes, or you can wait to get them from the hospital in 2 weeks."

What do you think I chose?

so for 10 minutes, i tried not to stress, thinking that if it was indeed breast cancer or the beginnings of it, there was nothing I could do at that point, only move forward the best way I could. I ran the elliptical tape of spanish phrases and verbs in my head to drown out the ticking of the clock.

I walked into his office, sat down and watched him look at my dossier.

"it's normal. No cancer. You have nothing to worry about."

That is the best two words anybody can say to me. "I do" was the one that E told me a month ago, and "no cancer" today. I walked outside, relieved and tired. Had only slept 4 hours the night before. Perhaps exhaustion beyond normal fatigue is a good way to combat stress. Maybe not, but today it worked.

Mom might get her results on Friday. I want to go with her, and feel that i should, but I would like BSpgty to come along. We all support each other - I support mom, and BSpgty supports me and my mom. Mom supports BSpgty and myself.

I really really hope mom she gets those same two words.

I hope...

Learn a new language

This place is amazing!!!

So user friendly, so clear, so much fun!

I'm signing up for Spanish, Greek, and of course, my mother tongue - Slovak.

And did I mention - IT'S FREE!?!?

gadgets for motivation

2 miles today with my new toy and shoes.

Run was good, but shoes were not.

Got them on sale, but i think somebody wore them before me, cause when I took them off, the left foot at the cuff was pulling to the right - the inside of the shoe. It was pretty obvious when i took them off. No wonder I was having sharp pains on the inside of my right knee.

Will bring them back to the store with a disclaimer: "Check your shoes before you re-sell them".

Bastards.

Think I'll pony up the extra $ to get a NEW pair.

Looking forward to more runs, perhaps I'll try outside cause inside on the treadmill is too easy...